Special Sale at my Website and Etsy!

I am running a special sale at my website and at my Etsy shop this month to benefit FARA (the Friedreich's Ataxia Research Alliance). The sale will run through the end of May in honor of my niece, Allison's 18th birthday. 100% of the purchase price of any item will be donated. Those of you who have read my blog in the past know that my niece is afflicted with this disorder and I have a personal mission to do what I can, when I can.

Friedreich's Ataxia is a rare degenerative neuro-muscular disorder that effects 1 out of every 50,000 people. It causes the loss of motor coordination, loss of mobility, slurred speech, curvature of the spine, heart damage and sometimes diabetes, deafness, blindness, and swallowing difficulties. Currently treatments are limited and no cure exists.

Recent research has yielded promising results for the future! Effective treatments and possibly even a cure could come in the very near future!

I have linked a video below which talks about FARA and their mission to fund research and promote awareness of FA.

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1 comment:

Sarah Ann said...

Thanks for sharing.

I help manage an online support community for people affected with Ataxia. If you have come across this site in search of support and kind words from others like you, stop by and say hello: http://www.livingwithataxia.org